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Thursday, May 17, 2001

Family links tainted water at Camp Lejeune to children's illness

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Raymond T. Conway / Stars and Stripes

The Rose family, clockwise from left, Dahlia, Nathan, Hilda, Jeff and Daniel, play a game of cards before dinner at their Vilseck, Germany, home. Nathan and Daniel have health problems that the family thinks are related to contaminated water at Camp Lejeune, N.C.

When Hilda Rose left Camp Lejeune 15 years ago, she carried with her a legacy of her stay: two small, sick sons and a load of guilt.

Rose could not stop blaming herself for the children’s birth defects and resulting complications. Doctors told her the conditions were hereditary, but neither she nor her husband, Sgt. Jeff Rose, could find any evidence in their respective family trees to support the diagnosis.

Last year, Rose, now a 39-year-old mother of three living in Vilseck, Germany, found out shocking news.

The water she drank, cooked with and bathed in throughout both the pregnancies at Camp Lejeune was contaminated with chemicals that are known to interfere with normal fetal growth.

Rose’s oldest son, Daniel, was born six weeks prematurely, afflicted with a heart murmur, and now is developing a stomach ulcer at age 16. His brother, Nathan, was born two weeks prematurely with a debilitating kidney problem he will have for the rest of his life. Both children were conceived and delivered at Camp Lejeune.

Their sister, conceived and born in Florida, is perfectly healthy.

Marine Corps officials told Rose that there was no scientific evidence linking birth defects or childhood illnesses to the contaminated water discovered 18 years ago at Camp Lejeune.

But Rose believed that she finally had an answer to the question that had plagued her for almost two decades: Why my kids?

Volatile chemicals

It was May 1982 when scientists doing routine testing first found traces of the degreaser tricholoroethylene, or TCE, and the dry-cleaning solvent tetrachloroethylene, or PCE, in the drinking water at the Tarawa Terrace and Hadnot Point housing units at Camp Lejeune.

The amounts of the two chemicals was small, well within the safety margins dictated by the Environmental Protection Agency’s guidelines, said Fred Cone, deputy assistant chief of staff for facilities at Camp Lejeune.

Scientists were concerned enough to perform repeated tests of the water, but the results were inconsistent.

“They could go for months and not get anything, and then get a spike,” Cone said, using the term for intermittent readings of elevated levels of chemicals.

At first, lab technicians thought the spikes in the water samples were caused by paint that coated the inside of the water lines. But when the technicians took samples of water from the base water processing plant, no such contamination showed up.

No one ever considered the chemicals might be leaching into the system from ground water, Cone said.

“Today, we know about ground water contaminants, how they flow, how they get in the system,” Cone said. “Twenty years ago, this [concept] was new to us.”

Further tests for chemical contamination continued to be inconclusive. And during the 1980s, Camp Lejeune residents continued to drink, bathe and cook in base water.

Including a pregnant Hilda Rose.

New parents

Hilda and Jeff Rose met in the early 1980s in Jerusalem, where the young sergeant was assigned to embassy duty.

Over the objection of Hilda’s Palestinian parents, the couple married in January 1984. That same month, they moved to Tarawa Terrace, where Hilda soon became pregnant.

Six weeks before her due date, Hilda went into labor. Because the base hospital was ill-equipped to care for premature babies, Hilda was rushed to a Navy hospital in Portsmouth, Va., where Daniel was born. The elated parents counted 10 fingers and 10 toes.

But doctors soon discovered the newborn had a heart valve defect.

The condition is usually genetic, but neither Hilda’s nor Jeff’s families had a history of heart problems. For the first year of his life, Daniel took digoxin, an anti-arrhythmic medication, to prevent his heart from skipping beats.

Leak discovered

In January 1985, as Daniel was taking his first steps and babbling his first words, Camp Lejeune officials tested all eight of the base’s water treatment facilities and all 100 of its wells.

This time, they found chemical contamination in the two wells that serviced Tarawa Terrace, the enlisted quarters where the Rose family lived, and another two contaminated wells serving the officer’s quarters of Hadnot Point.

The chemical levels exceeded federal guidelines. Base officials immediately shut down the four wells, Cone said.

Then, on Feb. 8, 1985, nearly three years from the initial discovery of chemicals in some of the base’s potable water sources, base officials sealed off 12 more wells they said were chemically contaminated after repeated tests yielded similar results.

In March 1985, Hilda became pregnant again. Two months before the new baby was due, she and Jeff left for Camp Pendleton, Calif., where Nathan was born two weeks premature.

While Daniel’s health issues at birth were relatively mild, the Roses’ youngest son had an urgent problem: holes in his kidneys that caused urine to build up to potentially toxic levels in his tiny body — a condition called urinary reflux. Surgery closed the holes, but Nathan suffered countless infections during the first year of his life, Hilda Rose said.

Once again, doctors told the Roses their son’s birth defect was genetic. And once again, the couple searched their respective family trees, only to turn up no evidence of malformed kidneys.

A leak source found

In May 1987, following an investigation, the North Carolina Solid and Hazardous Waste Management Branch determined a leak from a private dry cleaner business near the base was the culprit behind the chemical contamination of some of the base’s water sources.

The North Carolina Department of Natural Resources and Community Development ordered ABC Cleaners to “cease and desist” from dumping solvents in septic tank systems.

Then the clean-up process began, run by the Environmental Protection Agency and funded in part by the federal government through the SuperFund clean-up program.

Scientists are using the “pump and treat” method, in which ground water is pumped to the surface, treated for chemicals and returned to the aquifer.

It could take as long as 30 years to fully clean contamination from the chemical leak, said Carl Terry, EPA spokesman for Region 4 in Atlanta.

Although ABC Cleaners was not fined or punished when the leak was first traced back to the business, the EPA is negotiating with the company to recover past and future clean-up costs, Terry said.

The Marine Corps has spent about $90 million since 1992 on remediation of all contaminated sites, and anticipates spending another $147 million over the next two decades, environmental engineer Rick Raines said.

The efforts have included turning off the wells, closing the treatment plant at Tarawa Terrace and building an auxiliary supply line from another plant, and helping the North Carolina environmental regulators determine the source of the contamination, said Capt. Alan Crouch, Marine Corps spokesman at Camp Lejeune.

The eight water treatment facilities have been consolidated to five at Camp Lejeune, and the water is tested routinely for compliance with federal and North Carolina safety standards.

In fact, they exceed guidelines, said Cone, the Camp Lejeune engineer. The state requires water to be tested for volatile chemicals every three years. Scientists at Camp Lejeune test treated water every month. Wells are tested annually, except for those within 1,500 feet of a known contaminated site, which are tested every six months, he said.

“And it’s clean,” Cone said of the tested water.

ABC Cleaners isn’t the only source of water pollution. Cone and Raines said many of the contaminants date back to the 1940s and ‘50s — from auto body and maintenance shops, underground storage of petroleum, solid waste, gas stations and underground housing heating tanks, to name a few. Much of the pollution happened before anyone knew better, before state and federal regulations put a stop to the practice of arbitrary dumping.

The mystery of Camp Lejeune’s polluted water had been solved and the problem was being tackled.

And the Roses are doing some tackling of their own.

‘I’ve cried so many tears’

Hilda Rose is now director of the Vilseck School-Aged Services Facility, a program to care for children before and after school. Her husband, who left the Marines in 1987, works as a free-lance writer in Germany.

Daniel is 16. He has been diagnosed with a mild form of attention deficit disorder — an inability to sustain focus on a required task — and he recently learned he is developing an ulcer.

Nathan is 15. Only 40 percent of his right kidney works; his left kidney is smaller than normal.

“I take medication so they won’t fail on me,” Nathan said.

To ward off kidney infections and other complications, Nathan follows a complex regime that includes downing medications, vitamins and iron supplements two to three times a day. He visits a doctor every six months for a check-up. At some point, it’s likely he will need a kidney transplant.

“I’ve cried so many tears,” Hilda said. “I watched as doctors picked at Nathan and put tubes in him as a baby. It was very, very hard for a mother to go through that, seeing them treating a little baby like that and him looking at me with eyes saying, ‘Mommy, what’s going on?’ and I couldn’t explain it to him.

“And now, I see him taking all this medication and I wonder what’s the long-term damage.”

Dahlia is the Roses’ 13-year-old daughter. She was conceived and born in Florida in 1988, after the family moved to Eustis so Hilda could accept a job with the public school system there.

Dahlia arrived perfectly healthy and right on time. No birth complications. No birth defects. No major illnesses then — or since.

Looking for answers

In November 1999, the Marine Corps sent out a mass media call to find former base residents who conceived or bore children between 1968 and 1985 to participate in a survey sponsored by the federal Agency for Toxic Substance and Disease Registry in North Carolina.

The agency had been performing a series of studies on the health effects of dry-cleaning chemicals, including PCE and TCE, the chemicals found in the water at Camp Lejeune in the 1980s. Some of the studies, based on contamination levels in which traces of the PCE and TCE were 142 to 285 times higher than levels detected at Camp Lejeune, showed that adults experienced headache, dizziness, nausea, vomiting and intoxication.

Other studies showed that exposure to the dry cleaning chemicals can harm unborn children, said Dr. Wendy Kaye, chief of epidemiology at the federal Agency for Toxic Substance and Disease Registry, or ATSDR, in North Carolina.

“There have been several studies that have looked at the health effects of these two chemicals on unborn children and have been linked to specific birth defects and childhood cancers such as leukemia,” Kaye said during a November news conference at the Pentagon.

Adverse effects of fetal exposure to dry-cleaning chemicals include heart malformations, neural tube defects, oral clefts, low birthweight and increased chance of death, according to a 1997 ATSDR report.

In 1997, the agency performed a dry cleaning chemical contamination study that pinpointed Camp Lejeune residents. Researchers identified 6,000 infants whose mothers lived in Tarawa Terrace and Hadnot Point during the 17-year period of contamination.

The male children of mothers who lived in Hadnot Point exhibited “statistically significant” low birth weight, the report states. No differences were noted in most mothers who lived in Tarawa Terrace.

The report notes that, by some scientific standards, Camp Lejeune residents were not exposed to very high levels of TCE or PCE.

“Because the concentrations of TCE detected in the drinking water at [Marine Corps Base] Camp Lejeune are so much lower (100 to 10,000 times lower) than the levels causing the previously mentioned effects, it is unlikely that adults would have developed noncancerous adverse health effects,” the report says.

Nevertheless, ATSDR decided it needed to look more closely at the effects of Camp Lejeune’s water contamination. The agency especially wanted to perform additional studies on the effects on children, in cooperation with the Marine Corps and Camp Lejeune officials.

Using base housing records, the Corps and ATSDR have been able to identify 16,500 parents who qualify for participation in the study.

ATSDR needs at least 13,200 parents to respond to a survey before scientists can determine if there is enough cause to purse a study.

So far, 10,238 eligible Camp Lejeune health survey participates have been located, including the Roses. Finding the rest of the eligible parents is proving to be a daunting task, Corps officials said.

“We have a very challenging situation and we want to do this the smart way,” said spokesman Maj. Patrick Gibbons.

Officials have searched birth records, housing records and even motor vehicle records to try to find former residents, said Col. Michael Lehnert, assistant deputy commandant for installation, logistics and facilities.

The Privacy Act prohibits the federal government from releasing Social Security numbers, so searchers are stuck with tracking people using their name alone.

“The problem is, if you have a Bill Smith, there are a lot of them out there,” Lehnert said.

During a mass media campaign in February and March, the Corps contacted 1,373 daily newspapers, 1,171 weekly newspapers and 1,027 television stations to write and air stories about the search. Roughly 2,000 of the participants responded to the media blitz.

Who’s responsible?

Until further studies are performed, there is no hard link between the Rose children’s health problems and the water they and their mother drank in the 1980s.

Yet even in the absence of scientific proof that anyone suffered adverse effects from Camp Lejeune’s water, people associated with the base who have health concerns are not going to stop wondering why. Did the base water make them sick? Why weren’t the wells shut down sooner? And who is going to accept responsibility if and when science shows the dry-cleaning chemicals were harmful?

“Who’s responsible? That’s not a question I can answer,” Lehnert said. “That is still in the realm of speculation.”

Lehnert has heard of a few parents claiming the contaminated water led to birth defects or contributed to the death of a child. That doesn’t make it true, he said.

“There are 16,500 people” whose children were exposed to the chemical contamination, Lehnert said. “There are going to be people who die and get sick.

“I’m not trying to rationalize it away, but that happens.”

Whatever happens, the Corps will not pretend the issue isn’t important, Lehnert said.

“As an institution, the Marine Corps has made a commitment to getting to the truth,” Lehnert said. “If the truth is unpalatable, so be it.”

Meanwhile, Nathan Rose keeps taking his pills and hoping for the best.

“I have to go through this my whole life,” said the scrawny teen. “It’s the same thing over and over every day.”

Hilda and Jeff can only watch.

“I just keep praying he’ll be OK,” Hilda said.


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